UM is internationally renowned for its innovative educational methods, dynamic research portfolio and its diverse, international population. The Alzheimer Center Limburg / Cognitive Neuropsychiatry and Clinical Neurosciences Group has a long track record and high international reputation regarding research on early diagnosis and management of cognitive disorders, including impact of behavioural problems, use of assistive technology, dementia caregiver issues including counselling and interpersonal problems, and cerebral mechanisms of quality of life. In recent years UM has contributed excellent studies on YOD covering a broad range of topics, e. g. behavioural problems, rates of institutionalisation, awareness of disease, use of formal and informal care, and caregiver perceptions. UM is part of large international research networks including the European collaboration on psychosocial interventions in dementia (INTERDEM) and the European Alzheimer’s Disease Consortium (EADC). The centre has been involved in several 6th and 7th EU framework programmes. Recently UM together with the Radboud University Nijmegen conducted a longitudinal study on 271 people with YOD evaluating the needs of patients and carers as well as the access to and satisfaction with service provision and support (Needs in Young Onset Dementia Study, NeedYD).
The UM team will be led by Dr. Marjolein de Vugt. She is coordinator of the Alzheimer Center Limburg and project leader of the NeedYD-study, takes a leading role in the INTERDEM collaboration and is a board member of the Task Force Young Onset Dementia of International Psychogeriatric Association. Prof. Frans Verhey is the director of the Alzheimer Center Limburg and chair of the research division for Cognitive Neuropsychiatry and Clinical Neurosciences at the Institute of Mental Health and Neuroscienes at UM. Prof. Raymond Koopmans at Radboud University Nijmegen leads the IPA task force on YOD and will collaborate with UM with special regard to the management of neuropsychiatric symptoms. Dr. Christian Bakker is a health care psychologist at the Florence Centre for Specialized Care in YOD in the Hague and chair of the scientific committee of the Dutch National YOD Knowledge Centre. As a researcher he is involved in the NeedYD-study and in other projects on YOD at UM and the Radboud University. Drs. Joany Millenaar is a psychologist and, as a junior researcher at UM, involved in several YOD projects.
Role in the consortium
UM leads WP3 and is partner in WP2 and WP4.