Deutsche Alzheimer Gesellschaft (DAG, German Alzheimer Association) is a non-profit umbrella organization of more than 135 regional patient and carer associations in the country. The chairperson of DAG is currently also chairperson of Alzheimer Europe. DAG is closely collaborating with Alzheimer Europe (Luxembourg) and Alzheimer’s Disease International (London). DAG has long expertise in raising public awareness, networking, and publications. Since 2002 DAG has been providing a telephone helpline which is used by over 5.000 callers per year. DAG was involved in planning and conducting an educational programme for family carers in collaboration with TUM and has set up its own support programme for research on dementia care. DAG makes extensive use of web-based informational and social tools including a moderated chatroom for patients, carers and professionals and thematic forums for young people and for patients at early stages of dementia. DAG provides a comprehensive series of information booklets and brochures and issues a quarterly newsletter. It organises a bi-annual conference focusing a wide range of caring issues. DAG has close contact to many institutions of the health and care system in Germany and is a member of several advisory boards including the Ministry of Health and long-term care insurances. It is experienced in organising large conferences and workshops for various target groups. Currently DAG is involved in a research project evaluating a telephone intervention for family carers.
The DAG team will be lead by Sabine Jansen. She has a background in social work and economy and has been the executive director of DAG since 1997. She is member of several national advisory committees and member of the nomination committee of Alzheimer’s Disease International. Sabine Jansen will be assisted by two staff including Helga Schneider-Schelte who has special expertise in the design and conduction of dementia caregiver support groups and Susanna Saxl who is the media and communication manager of DAG.
Role in the consortium
Main purposes of the Alzheimer Association are:
- to bring awareness and provide much needed information on Alzheimer’s disease and other forms of dementia
- to enhance care and support for people affected by Alzheimer’s and other forms of dementia
- to facilitate exchange of experiences and information
- to provide a leading voice for Alzheimer’s disease and dementia advocacy by petitioning, educating decision makers on the toll the disease takes and providing resource for policies development.
Alzheimer’s Associations exist in many countries around the world and many of these have subdivisions or chapters throughout the countries.
DAG leads WP6 and is partner in WP1, WP3, WP4 and WP5.